Welcome!

My hope is that there will be some resources here for families with special needs. Instead of reinventing the wheel, I have included resources that point to other resources. The posts here are simply reporting some of the things we have tried to make our daughter's experience more comfortable and productive. Please add any experience you have to help us and others help our children.

Tuesday, March 4, 2008

Funeral

The end of life decisions are difficult on every level. It is difficult to even think about planning for a loved one's death. As a parent, it is paralyzing to consider planning the funeral of my child. We have started the process, nonetheless. It is easy to avoid this process while you're in the midst of caring for your child or loved one, but at some point it is a process we must face. I would rather not face all of the decisions and planning the day our daughter passes. It will be a most difficult day as it is and the last thing I want to have to deal with is where, how, who and what will be done at her funeral during the 24-48 hours after her death. So, we decided to begin preplanning and that process started yesterday. As we gain more information that might be helpful, we will share it here. This blog tends to be more informational and technical in nature whereas our other blog share a bit more than that. Hopefully both will be helpful and bit more holistic. As parents we cannot live in denial of the prognosis of our daughter. It will not help her if we do not acknowledge her needs; the needs of today and the needs to come. We see her funeral as another step in the journey she is on. It is not the end. It is the next step. 
We actually experienced relief to some level to start the process. We also felt relief as we discovered that funerals do not have to be as expensive as we thought. There are many options to lower costs, depending on one's viewpoint of life and funerals. We will share all we can and we invite others to share as well.

1 comment:

Anonymous said...

I love you all and am thinking of you. I wish i had your strength - I find you truly inspiring...even after knowing you for 27 years I read your words and find myself humbled and touched by the man you are and continue to become through your experiences. Please hug and kiss Mac, Jenny, and Jacob ...

Ash