Uncommon Needs

Sharing the comfort by which we have been comforted and the helpful hints by which we have met the uncommon needs of our family.

Thursday, June 24, 2010

Van For Sale!

›
We have our handicap van for sale! Hopefully, our price will be fair and helpful to another family and helpful for ours as well. (It's a...
3 comments:
Saturday, May 29, 2010

Hospice - Symptoms of Death

›
This is not what we ever wanted to post. Our daughter, Macayla, finished her fight with Battens and died on May 22, 2010, her 9th birthday. ...
9 comments:
Tuesday, April 6, 2010

Alternating Air Mattress Helps Prevent Skin Breakdown

›
Anyone who remains in the same position in the bed runs a risk of skin breakdown and bedsores. Hospitals often have special mattresses that ...
1 comment:
Tuesday, January 19, 2010

Video Monitor a Huge Help!

›
For the last six months, we have been using a video monitor to keep tabs on our precious girl. It was one we got on sale and is made by ...
1 comment:
Wednesday, November 4, 2009

Kangaroo Joey

›
We tried using a new feeding pump, the Kangaroo Joey, for a month. It certainly has some nice features and I like its user interface and opt...
Tuesday, October 20, 2009

Kangaroo Joey vs. Zevex Infinity

›
We have switch feeding pumps from the Zevex Infinity to the Kangaroo Joey . Like anything there are pros and cons to either system. But so ...
Monday, September 7, 2009

Versed

›
We recently tried to control Macayla's grand mal seizures with Versed. Versed (ver - said) is often used in anesthesia and we get it in ...
1 comment:
Wednesday, August 5, 2009

DIY Beach Wheelchair

›
Going to the beach is a challenge with special needs. There are beach wheelchairs on the market and most of them will not work for a person ...
25 comments:
Tuesday, March 24, 2009

Catheter System

›
This year, Macayla started struggling from time to time to empty her bladder on her own. We have had to use catheters often and had a system...
1 comment:
‹
›
Home
View web version
Powered by Blogger.