Uncommon Needs

Sharing the comfort by which we have been comforted and the helpful hints by which we have met the uncommon needs of our family.

Tuesday, September 6, 2011

Sign Language Help

›
Sign language is not simply for the deaf or mute. Sometimes it augments communication for those whose speech is limited. We found that Mac...
2 comments:
Sunday, June 12, 2011

Transferring and Positioning - Maxi Slide Sheets

›
My wife is a nurse and has been training with a product called Maxi Slide Sheets. They are a really neat product for transferring immobile p...
Friday, May 27, 2011

Research into Lysosomal Storage Disorders

›
This article was shared and it sounds as if this discovery my offer some direction for future medicines and therapy for diseases such as Bat...
Monday, May 16, 2011

DNR Stands for "Do Not Resuscitate" not for "Do Not Relay"

›
Recently, I was interviewed by a local news station about school policies concerning children with DNR's. Macayla had a DNR while she w...
Wednesday, May 4, 2011

Augmentative Communication for iPad & iPhone

›
We really wished we had learned more about aug com (augmentative communication) much sooner with Macayla. It would have helped her put some...
Wednesday, August 18, 2010

iPad for Special Needs

›
A friend of ours recently got an iPad as a surprise from her husband. I was jealous. However, she posted some photos of her son, Daniel, pla...
Tuesday, August 10, 2010

Sibling's Grief

›
Jacob is seven and Macayla's little brother. She died on May 22 and it is now August 10th. He has not cried or had any emotional outburs...
Saturday, July 31, 2010

Van Update

›
The van sold! Thanks to a new friend it sold via word-of-mouth and we are thankful it helped their family and ours.
Thursday, June 24, 2010

Van For Sale!

›
We have our handicap van for sale! Hopefully, our price will be fair and helpful to another family and helpful for ours as well. (It's a...
3 comments:
Saturday, May 29, 2010

Hospice - Symptoms of Death

›
This is not what we ever wanted to post. Our daughter, Macayla, finished her fight with Battens and died on May 22, 2010, her 9th birthday. ...
9 comments:
Tuesday, April 6, 2010

Alternating Air Mattress Helps Prevent Skin Breakdown

›
Anyone who remains in the same position in the bed runs a risk of skin breakdown and bedsores. Hospitals often have special mattresses that ...
1 comment:
Tuesday, January 19, 2010

Video Monitor a Huge Help!

›
For the last six months, we have been using a video monitor to keep tabs on our precious girl. It was one we got on sale and is made by ...
1 comment:
›
Home
View web version
Powered by Blogger.