Sharing the comfort by which we have been comforted and the helpful hints by which we have met the uncommon needs of our family.
Welcome!
My hope is that there will be some resources here for families with special needs. Instead of reinventing the wheel, I have included resources that point to other resources. The posts here are simply reporting some of the things we have tried to make our daughter's experience more comfortable and productive. Please add any experience you have to help us and others help our children.
Topics
- Augmentative Communication (2)
- End of Life (5)
- Equipment (18)
- Feeding Pump (5)
- Feeding tube (3)
- GI (2)
- Medications (5)
- Reflux (1)
- Seizures (1)
- Vision (1)
Friday, May 27, 2011
Research into Lysosomal Storage Disorders
This article was shared and it sounds as if this discovery my offer some direction for future medicines and therapy for diseases such as Battens. The information in the article is credited to Baylor College of Medicine. Click here to read the article.
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