Sharing the comfort by which we have been comforted and the helpful hints by which we have met the uncommon needs of our family.
Welcome!
My hope is that there will be some resources here for families with special needs. Instead of reinventing the wheel, I have included resources that point to other resources. The posts here are simply reporting some of the things we have tried to make our daughter's experience more comfortable and productive. Please add any experience you have to help us and others help our children.
Topics
- Augmentative Communication (2)
- End of Life (5)
- Equipment (18)
- Feeding Pump (5)
- Feeding tube (3)
- GI (2)
- Medications (5)
- Reflux (1)
- Seizures (1)
- Vision (1)
Thursday, April 17, 2008
Wheelchair
The only drawback we have over Macayla's New Bug (see the previous post) wheelchair is cleaning it. Recently, her feeding tube connector came undone from the feedbag port and it leaked all in her chair. It saturated the cushions and fabric to the point that it was dripping. The manual that came with the chair is not very clear about how to wash the cushions so we washed them in the machine on gentle and then tried drying them with air and no heat in the dryer. That did not work. It took most of the day to get the cushions dry because they held so much water. To make matters worse, there was still a faint oder of the spill in the cushions. We will experiment with other ways to handle this, but for now we basically must allow for an entire day for the chair to be out of commission while the pads dry. We are thankful we have a backup chair to put her in.
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