Sharing the comfort by which we have been comforted and the helpful hints by which we have met the uncommon needs of our family.
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My hope is that there will be some resources here for families with special needs. Instead of reinventing the wheel, I have included resources that point to other resources. The posts here are simply reporting some of the things we have tried to make our daughter's experience more comfortable and productive. Please add any experience you have to help us and others help our children.
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- Augmentative Communication (2)
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- Feeding tube (3)
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- Vision (1)
Friday, February 22, 2008
Cortical Vision Impairment - CVI
Our speech therapist suggested that Macayla could be possibly suffering from Cortical Vision Impairment. We cannot actually diagnose this in Macayla due to her inability to communicate, but it certainly makes sense. CVI is caused by damage to the visual pathways in the brain and not to the eye itself. Macayla's occipital lobe and pathways are significantly deteriorated while her eyes are fairly healthy looking. Macayla seems to pick up on moving objects better than stationary and she tends to gaze at light sources. She responds to certain colors better than others such as yellow and green. From what I understand, green may be an unusual color to respond to in CVI but it may be due to the fact that she was not born with CVI but developed it after she knew colors. Typically, CVI sufferers respond to black, yellow and red. Our therapist suggested that we put simple objects on a black field so that it stands out better. Macayla responds to it and tends to focus better. I also noticed that she zeros in on white letters on a black screen such as the "This movie has been formatted to fit your screen" message at the beginning of some movies. She's not reading of course, but the pattern catches her eye. I wish we had known more about this sooner so that we could have looked for indicators and stimulated Macayla's vision more effectively.
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